HMD (5/13/12)

Y'all know what today is, so I don't have to spell it out.  

At least, I have an excellent excuse to stay in bed today.....  ear infection, sinus infection, cold, with chills and fever, headache, muscle aches, fatigue.  I have it. 

Wheee...

Hang in there, ladies.  

Bucket List

Reading the post, This Path in Life; To Do list, the author was talking about her to do list/resolution list. Her concerns was about production and finding motivation to complete.  I totally get her.   I had set up a bucket list last year, (and reassured folks that I wasn't dying, just that I want to leave the bucket list open for the rest of my life to finish without rushing.)  So I decided to check my old blog's post that I had put up last year.  I was both pleased and resigned at the same time looking at the items.

Well, at least I'm not in any hurry-

Learning
Ghost Hunting 101 at University of Louisville/Delphi Center ( Completed in May 2011)
Writing/publishing a book. (In process- a nonfiction)
Sand Tray techniques
Learn how to make a tube drum (January 2011)
Advanced labyrinth facilitating (Level 2)
Disaster Mental Health/Red Cross

Self-Care
Walk 100 labyrinths. (So far, 13 in IN, LA, KY, DC, MD 2011, 3 in 2012)

Stop being the peacekeeper and stand up for myself. (In process)
Make a list of things that make me happy- small, big, profound, simple (March, 2011)
List about what you really like about yourself. (ongoing)
Do an unplugged day at least 15 days per year. (ongoing)
Ask friends to do compliments about me, (words, artwork, whatever!) and make a poster.


Books
The Happy Book (In process)
Feminism: The Essential Historical Writings
He's a Stud, She's a Slut and 49 Other Double Standards Every Women Should Know
The Feminine Mystique (April, 2011)
Sexual Politics
All About Me.
I am more than my infertility.

(the list is long..I'll keep 'em on Goodreads- you can look 'em up.)
Make a list of your favorite childhood books and explain why you love them.

Community
See The Vagina Monologues
See the plays-
  "Into the Woods"
  "Les Miserables"
  "Wicked"
  "Mamma Mia"
Participate in Vagina Monologues (If you know V-Day w/ deaf themes in 2012 or 2013, ring me up!)
AIDS Walk (September, 2011)
Habitat for Home in New Orleans
Set up a community activity of creating a labyrinth of shoes, then donate shoes to a women's shelter
Do a cheer-up package for a friend or three. (Completed in April and December 2011, and February 2012.) 

Art
Create a mosaic of a labyrinth.
Learn how to make bead jewelry
Paint again. (so far, 17 paintings!)

Start and finish a quilt.  (June 2011)
After going to an event of your favorite activity (comic, science fiction, romance convention) and get freebies, do a bulletin board with the collection.
Scrapbook on collection of postcards (March 2012)
Make a book of favorite recipes to send to a close friend
Donate some art to an organization (September 2011)
Do a room in purple and silver


Health
Exercise 2-3 times a week.(ongoing)
Go to the park with the dogs once-twice a week.(ongoing)
Make healthy dishes from scratch (ongoing)
Do yoga at least twice a week (working on it)


Charity
Volunteer for clean-up at a national park (July 2011)
Donate hair for Locks of Love and in honor of my aunt, cancer suvivor. (No luck! Will try again)
Freecycle listing of the television and entertainment center (May 2011)
Donate money to a non-profit organization fighting domestic violence (February 2011)
Provide my time and canvas labyrinth to an organization with DV/SA survivors to learn self-care and love.
Donate money to Green Project- New Orleans
Make cookies and donate to a soup kitchen.
Make a dish to donate to Occupy Louisville


Just for fun of it
Kentucky Renaissance Faire
Get a tattoo of triple labyrinth on the shoulder
Get the frog tattoo refreshed/re-colored.
Try hot balloon riding.
Try a new food each month. (ongoing)
Send beanie dolls to American soldiers (anysoldier.com) (January, 2011)
Take pictures around the town, with quirky things and create artwork from photos.(ongoing)
Go naked, fingerpaint/paint the walls (in the shower) and self.
Watch a meteor shower at the wee hours of August (August, 2011)
Attend a Comic book convention.
Go to a Science-fiction con.
Have your 'gnome'(my stuffed Erif Horse) at weird places taken with photos! (In process)
Blow bubbles at your porch and observe visuals through the bubbles.
Play with playdoh- do the 10 things with them (your name, an image of yourself, cupcakes, animals, landscape, and so on.)(January 2011)
Make the perfect kid's day menu and eat the food on the menu- you ARE a kid that day!
Dragon-con in Atlanta, GA
Comic-Con in San Diego, CA

Vacations/Trips
Wisconsin, (January 2011, June 2011)

New Orleans, LA (March 2011)
Nashville, TN (country music sightseeing)
Waverly Hills Sanatorium (October 2011)
Star Trek Exhibition/Louisville Science Center (February 2011)
Frazier International Historical Museum (February 2012)
Ventriloquist museum- Fort Mitchell, KY (only museum about ventriloquists in the world)
National Underground Railroad Museum, Cinn, OH.
Gravity Hill in Princeton, KY.
Kansas City, KS/MO (December 2011)
Pet Haven, Shepherdsville, KY.
Centralia, PA
Ireland
Nova Scotia, Canada

Like I said, I'm not in any hurry...    I'm taking a time out to focus on myself, although I won't say no to blowing bubbles and painting now and then...

Hope that gives you ideas-   is there anything you would like to do, on whims, dreams, small and large, short and long-term?  Share, if you'd like.

Not sure. (3 of the 4 parts)

This follows up to "Without Answers", two months before the surgery.

That day was both hope and despair, hand-in-hand.

Almost a month after getting the MRI, I went to a women health center nearby.  I was nervous not knowing what to expect but that I had to see an OB/GYN.  I was relieved to see that there was an interpreter-  not familiar to me. Much better, since it's easier for me to 'hold up' without me knowing the person either professionally or as a friend.

The interpreter and I got to know each other a bit, as she needed to know my signing style and way of communication before we went in for the check-in with the nurse.   In the nurse station, I noticed a poster of 9 months of the fetus growth- you know that one tiny speck at first month, to 6th month cantaloupe-sized, to 9th baby-sized on the wall.    I looked and wondered to myself if I'd get to experience pregnancy.  Reminded myself, "That's why you're here now."

The interpreter and I entered the room where the OB/GYN doctor will meet us.  She came in all smiles and cheerful.  She stated that she had reviewed the tests that was done on me from the other months, and she cheerfully said, "I think it is just a fibroid, and we can fix it."  I felt a great sense of relief, and I asked her is it even possible to have children with fibroids or afterwards- she said "yes it is possible, if we can make sure if the fibroid is not where we don't want it to be." She added that some pregnancies were successful even with fibroids without complications.  Hope grew.

The doctor said that despite that we had two ultrasounds in the past, she wanted another with "an ultrasound technician who is very experienced in identifying fibroids"- which would help them determine where the fibroid was, and the size.

The interpreter and I found ourselves in another waiting room.  We chatted a bit; I was starting to feel hopeful, that there is a chance for me to have children.

The ultrasound technician fetched us- she said, "it'd probably take ten-fifteen minutes then we'd be out" with a smile.    I laid on my back, she made sure that the gel was warm.  She put the transducer on my stomach, and pointed at the flat television up on the wall where I could see it, "you can see it as I see it on my monitor down here" with a smile.    I thought, "great, I'd see the fibroid, and perhaps later on I'd get to see a baby in my uterus too here."    

Within 10 minutes, with the nurse's face becoming sober.   

20 minutes, pictures were taken more than I expected. 

30 minutes, the technician said, "can you wait in the waiting room and I get the doctor to see the photos?"

I knew. 

I went into the waiting room with the interpreter.  I pretended not to see while the technician brought the doctor.  Some minutes passed.  The doctor left and brought back another doctor, older than her with her.  All three persons in that room, and me in the waiting room, and there was anxious tension.  

The doctor came to me, and asked if we can talk with her in her office.   The hallway felt like a mile. 

http://worldsstrongestlibrarian.com/8876/curing-tourettes-part-3-movement-initiated/

As we entered the doctor's office, she turned to say, "We are not sure whether it is really a fibroid or something else."  I stared at her-  she continued, explaining that the technician is experienced with identifying fibroids, but this cyst does not have the fibroid characteristics that she is familiar with.  

"With that in mind, I feel this is out of my expertise. I would like to refer you to someone who is an expert in this. She can help you better than I can."  

I nodded in silence.  

I found myself in another room, this time while a woman called this department to set up an appointment.  She handed me a business card, and I looked at it with blind eyes.  

I walked to my car and I sat in the seat.   I looked at the card again, seeing the name of the services, and specifics- Gynecologic oncology beneath it.  

Gynecologic oncology, and that meant nothing to me. I did not understand, nor wanted to.  

  

Ice

It is quite hard for me to figure where my emotions are these days.  Ha!  As if they are eggs, hidden among the straw in the henhouse.     In a way, it does make sense- after all when exploring emotions, I get 'pecked' by the remembrance, "Childless" and I try to withdraw my hand hoping that it is not true.

Too late, the hand is already bleeding, as my heart does.  That's the best analogy I could think of.

Today, I took a long walk with my dogs, away from humanity.  Hmmm, there were remarkable notes of babies everywhere.  Not human.   Animals.  A doe with her twins among the trees.  A squirrel carrying her baby, his tail wrapped around her neck across the parking lot.  Two sparrow fledglings practicing flying under the oak tree.  A possum carrying several babies on her back.

I watched the antics, and I felt...  nothing.       No pain, no joy.  No grief, no happiness.  No anger, no contentment.   Nothing.   Just emptiness.




::photos:  Henhouse-  http://www.commonweeder.com/2010/12/16/hen-house-4/
Squirrel- http://www.arkive.org/grey-squirrel/sciurus-carolinensis/image-A9700.html

Exposure risk

I made a decision to keep my health issues private when it comes to work.  I had confided in very few people at work or networking of why I would be absent for a while.

Now I have been back to work a month since the surgery.


It would be an understatement if I said everything was fine.  On the first day back, I knew very well that there were at least two very much pregnant co-workers. I knew there was a baby shower soon during the  same week.  I knew there would be families bringing their babies.  How funny, how one hurts while avoiding pits and holes of announcements and invites to baby showers, ducking behind the corners when spying a hint of a woman waddling with a belly ahead, and slapping a fake smile on while co-workers ask you, "Have you seen T's baby yet?  Here is her photo..."

A hazard for women who deal with infertility, or become childless not by choice.  Ain't kidding here.  (Oh, the pun there!)

"Maybe it could be easier if you have told them...?"   I could have...but why for?

* I value my privacy when it comes to work.
* I don't want to see sympathy in their eyes, it's hard enough to walk around without seeing someone looking at you with sadness- that'd make me cry at the drop of a hat.
* Very few people have awareness about emotional effects of infertility, even less childlessness.  So basically, one could harm even with good intentions.  So I'd prefer not to explain over and over across work/time.


Recently a co-worker just had her baby.  I'm truly blessed with that co-worker since she had been exposed to infertility/ childlessness of someone she is familiar with in the past. So that contributed to her awareness on how to work with me, especially with her baby bump out to here. It also helped that I knew of her pregnancy long before I found out I couldn't have children. No surprises here, no shocking heart-attacks, no icy numbness.  Anyway, I knew she would be gone soon once the child was born, and I dreaded the unavoidable outcome.

"Is the baby born yet?"
"Isn't it so exciting? The baby is cute!"
"Have you seen the photos?"
"Let me show you..."

Now, it's not about the co-worker, it's not about her baby.  What it is about reminders of what I had lost.  What I cannot have or experience out of my own body.  My body failing its natural capability to reproduce and that's what is pushed upon me, re-opening my wounds repeatedly.  My phantom womb cramping in ice.

I could explain to co-workers not to share their pregnancies or their babies, but I feel we should not ask them to censor what they want to share (through email, meetings, breaks, etc) and they are very much a family within where we work together.  All I can do at this time is to excuse myself and keep my distance with an apologetic smile, before ducking into my office to get another tissue out of the tissue box.

If this sound familiar to you, you're not alone.  WE are all ships on the stormy waves.

Now.... I admit I'm tempted to pull out the ruler and say "All right, class...pay attention" and explain about emotional affects related to infertility, and of possible responses of women, from struggling with infertility (with medical interventions) to childlessness, by choice or not by choice.  Grief and loss, stages and how it apply to infertility and childlessness and of how to support someone going through that. Yes, sir...

Perhaps, I will- someday but not now. I need to keep all my energy to myself at this time.  It's emotionally exhausting these days.

Simultaneity

It has been almost two months since the surgery- hard to believe how time had flown. It was both agonizing slow and startling fast at the same time.  Throughout this ongoing journey, the statement, "Don't forget to love yourself" had been reinforced repeatedly. 


Let me share an hard-earned lesson I had learned. 


I noticed that some people cut back on talking with me, or worse, stopped talking since I became open about my infertility, childlessness, your pick.  You know, last time I checked, infertility ain't contagious. 


"Why would they stop talking to you?"  To be honest, there could be good reasons, silly or even bad reasons.  I noticed from certain infertility blogs, authors observe that many of their friends who have either children and/or babies, or are going through pregnancy are just not there anymore- or the author herself had started walking away from those friends for her own sake, to reduce the hurt in her heart, the bleeding pain as she looks upon the faces of her friends' babies.  It also depends on how severe the infertility is, as well. I had noticed with women struggling with infertility while having medical interventions are responding differently, compared to women who have become infertile completely without choice, , and it also depends on timing (either as a sudden emergency surgery while bleeding after childbirth, uterus removal after finding out two months before, or of starting to accept childlessness after years of trying to get pregnancy.)  So basically, we all respond differently, and that also influences how people responds to us. 


With the uterus removed two months ago, after finding out I can't have children only a month before that, I personally have found that out the hard way of how I respond to triggers of babies and pregnancy. I collapsed in tears seeing a newborn for the first time since the surgery.  I found out how heartbreaking it is, with tears running down my cheeks as I pushed a cart at Target, going by the baby department.  I found out how tempting it was to hiss at a new mother with her baby, in which I responded in guilt at my own reaction.   Even now, I find that even after two months, my heart pounds so hard as if I just finished a marathon, seeing a cute baby quilt, that a friend shared on her Facebook page.  


There are friends who are pregnant.  There are relative who are pregnant.  There is no way to avoid them.  


You smile and go "ahh" "and "ohh" over the friend's sonogram, while your heart is breaking into pieces.  A woman going through infertility struggles recently said, "A dear friend is pregnant now; I could confide in her but now, not anymore. Our talks are almost 100% centered on her pregnancy. I don't have her support anymore."  Another commented, "I actually do love my best friend very much and have gone through so much with her, it's just that I'm mad with jealousy. I felt like we could share EVERYTHING but this we cannot. It's killing me."  You try to stay strong and positive for your sister who just got pregnant with her third child, wondering "Why me, God?" Sounds familiar?    You're not alone.  


Through the struggle, I realized I could not be available for certain people who are pregnant.  I struggled through the process. I tried to explain my emotional responses, and the reason why I need boundaries now, to protect myself while going through this grief brought on by the uterus removal.  Fortunately, many people accepted the point, I need time to grieve, to re-discover myself and adjust to the new reality, even if they did not understand why.  Unfortunately, other people did not.  Even when I wrote a heartfelt letter, pouring myself out in words, I get the message back, even when it's not straightforward, "But I need you to be there during my pregnancy! You should be there for me."  


Perhaps, I should be.  But I can't.   


I was ridden with guilt.   I developed an ulcer from the anxiety, "I don't want to cause her stress- what if she loses the baby just because she is mad at me?"  In bed, I curled in the feral position, thinking, "I'm selfish. I should forget about this. Even when I know I'd cry when she'd show me anything about the baby."   I was very much distracted from my own needs, both physical and emotional, beating myself up.  I sent a package, feeling bad that I couldn't finish the craft; I had doubts in myself on whether I was worthy of the friendship.  I even started making a baby blanket even when everything in my mind said, "Red Alert, Red Alert!  BAD IDEA!!!"  

I had started seeing a psychologist, then a psychotherapist. That was the best decision I had ever made in starting taking care of myself in relation to infertility and grief/loss.   She said, "This is the worst simultaneity one could ever think of, of your loss and her pregnancy at the same time.  Keep in mind, this couldn't be predicted. How can it be your fault, then?"  With that statement,  I realized "How can I be there for anyone else if I couldn't be there for myself?"    Reluctantly, I started to accept that this happened, like it or not.  That I needed to give up on trying making amends, when I'm not capable of making amends for something out of my control.  I forgot Jules and that's someone I can't neglect, so I got to take care of Jules, me, and myself, for a time. How long?  To be honest, I don't know.  Yes, it's stinking that there are friends and relatives who'd love to have me there with them during their pregnancies. I'd love to be there for them.   However, I need to focus on myself. I did not even start grieving until last week, when I realized I was distracted by guilt for  almost two months.  Also, it drew up on me that I had apologized to people in my heart, "I'm sorry that my grief is in your way. I'm sorry that my childlessness is interfering in your life. I'm sorry that you are angry and I should get over all this already" for weeks.  Well, I do not have to apologize for what I had lost, my ability to bear children.  It is a part of me.  I'm not going to say "I'm sorry" anymore. 


I am sad about the infertility.  And also, I am sad about the loss of that close friendship and friends I have known for months, if not years.  


I’m still sad. I’m sad for what could have been but wasn’t. I’m sad for who certain friends could have been but weren’t. I’m sad for what we could have had but can’t. I’m sad for all the walking on eggshells, all the tense moments, all the pain, the guilt. I’m sad because I want to keep my friendship with her that I can’t have. I’m sad that I haven’t talked with her about anything. I’m sad that I had to view my every interaction with my friend as treading through ground littered with mines. I’m sad because I wish it wasn’t like this, but it is.


I’m sad because I love my friend and have so many happy and sad memories with her, so much history, and yet there will always be this wall between us, and things can never again be like they once were. All I can do is deal with what I have, now.


"Growth is the only evidence of life" John Henry Newman said, and I agree with him... life changes help us grow, love or pain it be. 


So, stop thinking about what people think of you. Stop beating yourself.  Don't think yourself selfish for needing to take care of yourself during the stressful time. 


Now it is the time to focus on myself and my grief.   So do you.   

Coping

Hadn't written much. I had finished three posts but I'm not ready to share them at this time.

I have been busy with work, which is good and bad.   Good in keeping me busy. Bad in distracting me during the huge need in taking care of myself emotionally.  

Good things there are some times that give me the opportunity to work and self-care at the same time.  I had given a labyrinth workshop last Saturday to a group of psychology, interpreting and social work students.  I sat down with people I had not met before, and we shared smiles and laughter.  I enjoyed sunshine while the kids walked the labyrinth.  I got a heartfelt hug from a stranger who recognized that I was there in the moment.

Thank you all with my heart.